Stefan's candle burns quickly

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lazytownfanclub's avatar
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Stefan Karl Stefansson's wife has revealed Stefan's cancer is in it's final stages. :(

Her post has been translated from Icelandic.

"Many have asked us about Stefán’s health, so I asked him to tell me about the state of affairs.

Stefán has been hospitalised for 14 days. On June 7, three liver tumours were removed. After the operation Stefan suffered an infection which lasted a week. and afterwards, he received an infection that lasted for a week in hospital. Stephen has bile-duct cancer (Cholangiocarcinoma), a rare and little-researched disease.

The disease is now advanced to stage four, and therefore, his life expectancy is unfortunately significantly reduced.

Medication is not in sight when the disease is so far gone. Experiments are being made with drugs and life-extending conventional and non-traditional therapies around the world. But the answers haven’t been found yet. Conventional chemotherapy also does not deliver results when this is the case.

Metastases of this disease can sometimes be removed by surgical procedures, such as the operation that Stephen went through, but it is unlikely that he will undergo more when they come back. Little can be predicted right now. We hope for the best.

It was unbearable to tell our children that their dad would not live to be an old man, and that the time we had together was scarce. Taking away the hope that their dad will ever recover. The trust of your children does not make you save, even when it seems unreal. It has been a relief to know that they have not been lied to. If someone thinks that children are not able to have meaningful conversations about death, life and existence, then the same goes wrong with many things.

A vigilous priest at the Children’s Hospital brought this hard encounter with me and the four children and did it beautifully and with profound professionalism. I could not have done it without him.

Our family and friends are all over the state of affairs and each one takes on these heavy facts that we’re faced with. It’s surprising that if you’re stuck in a scene in the midst of a catastrophe – the sun is shining right now, just as nothing has gotten to it – how can it be? Life is no problem.

I would like to thank Stefán, Nurses, Patients, and all 13-G staff for the publicity in recent days. Great people all together. I would also like to thank the unexpected friend that I acquired on a bench outside of the hospital for the confidential conversation, the guns of a coach who went to the rallies with Júli and Steina in the hall of the National Hospital and the nightly smile that smiled at me when I went home at night.

Although the chances and statistics are not in our favor, and Stefán’s candle burns quickly, we will not stay with it and be scared of fear. We know that time is precious as never before and we have promised to enjoy it as well as we can. Death is strange – life is nothing but magnificent!"

More at www.wetheunicorns.com/news/rob…

Please consider donating to support this incredible man. www.gofundme.com/2tm9tqk and to show him our love.

It is very sad but we are blessed to have him and to know of him and laugh because of him. Thoughts are with his family.
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Comments17
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Shinjuchan's avatar
Like so many others here I am grief-stricken. I had to step outside so as not to alert my youngest when I heard the news for a crying spell out by the flower garden. For some reason I had it in my head that the cancer was caught in its early stages and that although it would require some chemotherapy to treat, that he would be relatively safe. This is devastating!